Guest Blog
How Daniel Andrews and COVID taught me a new way of living with my disability
When Melbourne eases out of hard lockdown this month, I'm going to be walking particularly slow. It won't be because I am being diligent with newly-acquired 'COVID-Normal' behaviours.
It will be because...
4 months in following diagnoses and the emotions and coping strategies compete for attention. the initial euphoria has progressed to unfathomable gloom.Going out is not so simple as putting a coat on, anticipated anxiety creates road blocks which have just made themselves evident. I crave...
So the drunken weave has been diagosed at last, the mild confusion and poor recall too. Am I better off? I's hard to tell really.I am now in receipt of a discombobulating and disorganised rambling descent into who knows. I had diagnosed myself provisionally and felt weirdly comforted by that,...
MS AND MASTERS
Sometimes life throws you a curve ball. Earlier this year, as I looked down the barrel of a ‘yet-to-be-determined-diagnosis’, I was tormented by questions as my life was to change, quite literally, overnight. “Will this be my last Mother’s Day… am I enjoying the last days...
Let's be blunt, it's just the worst. Why did I come into this room? What was I saying again? I'm sorry, have I told you this before? What were we talking about? Ok, I need to look something up. Let me open my phone, put the pin number in, open the browser and... what was I looking up again? ...
Today is a good day.
Today I'm turning off the television and putting on music.
First I'm going to tidy up the mess on the floor, and conquer the vacuum cleaner. It doesn't expect me. It roars to life, but I have no fear. Right now I'm in control.
Victory....
There is a fog inside my mind.
Recalling words takes 2 to 5 minutes. I'm normally an intelligent and quick witted woman. I speak two languages fluently, this is, what's the word, starts with an R, ridiculous. Everything is in slow motion right now.
The MS fog is descending.
...
One thing about having a chronic, debilitating and diagnosed ‘incurable’ illness is having to find ways to tell the same story to people over and over.
You get asked what’s up, or down, and it’s hard to know what to say on the hop.
- Do I tell him the truth? ...
‘It seems like years since it’s been clear’ Here Comes the Sun, The Beatles (Abbey Road)
Some diseases will strike loud and hard, like a fist bashing on your front door. Others like mine come in ‘through the bathroom window’, where no-one’s...
Lemtrada: One patient’s personal account of how important getting your monthly blood tests are
In August 2014, I started treatment with alemtuzumab (Lemtrada) for MS. While effectiveness of MS treatments varies from patient to patient, following 2 infusions with...
Approximately August/September 2004, I was living in Balgownie with my then-boyfriend and two children. He was in Wollongong ICU because he’d embedded himself in the windscreen of someone’s car. That was not a smart thing for him to do, but I knew that he would wake up just fine. He spent 3 ½...
Hi there bloggers, my name is Min and this will be my first guest blog. After recently battling and beating thyroid cancer, I found my self in a new 'old place'. By this I mean I have had to learn the differences between all of the side affects of the thyroid cancer and relive the operations and...
Good afternoon, new readers and bloggers alike!
Recently, I was asked to be a guest blogger here at Uninterrupted, and I'm very honoured. First things first, I'd like to use this post to introduce myself.
My name's Mel, and I'm a 39-year-old single mother of two teenagers (aged...