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My MS Journey

Christmas

Christmas can be a crazy time of year, even for those who don't live with a illness like Multiple Sclerosis. After many attempts to write this blog post, I leave you with this.

MS Christmas Carol

This the season to be joyful,

Fa la la la la, la...

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Thank you

It’s that time of year that many of us send out Christmas epistles, updating friends and family on the events and adventures of the prior 12 months (plus allowing every parent an opportunity to showcase cute photos of our adorable offspring). In this post, I include my own personal twist on this...

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LadywithMS

Two years ago I could not have foreseen what MS would bring to my life. And no, I am not deluding myself with mindless positivity. I despise MS, although I have grown used to it. My surprise stems from the fact that I am a much happier person now than I was before my diagnosis....

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Taj mahal

I’ve always had a bucket list.  I add things all the time and I change my mind about which items are the most important to see with my own eyes. I have crossed a few things off – and every single one has been worth the effort, no matter how different it was from how I imagined it.  There is so...

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Recently, my co-blogger Amber acknowledged her six year anniversary of her diagnosis-date. My own one year D-Day anniversary took place earlier this month, and while I too need no excuse to eat cake, I have chosen a different way to...

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Cake

Today is the 6th year anniversary of my diagnosis with Multiple Sclerosis. I do not celebrate, (ok I may use it as an excuse to eat cake!) or commiserate, though I do acknowledge this day each year. I like to take a moment and look back over the past 12 months and see what I have...

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Road to the other side

Today I want to tell you about a recent experience of being totally open about my MS diagnosis in a very public forum.  Perhaps an odd story to relate when I’ve just posted (twice) on my views about...

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Sign post

I’m pretty sure there is a hard drive at a small medical centre in the western suburbs of Brisbane that is nearly full to capacity with my medical history from 2014. You might think this is because I was quite ill, but in actual fact, it was more due to the fact I was Clearly Not Fine...

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Laughing man in river

Have you noticed how much it helps to smile when you’re trying to do something really tough?  It’s not something I ever really tried to harvest before MS became part of my life.  Let’s be honest – I was almost a decade into living with MS before I finally learned to take advantage of this...

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Snake in log

“I'll have to tell the other registrars – they have a right to know”

It’s such a familiar situation – spending time with a person who has just been diagnosed with MS, hearing about what they have been through up to this point, answering questions they may have about my own...

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I don’t watch a lot of TV, but when I heard RJ Mitte was visiting Australia for some public speaking engagements on ‘Overcoming Adversity’, I knew I had to get there. RJ has a starring role in the cult TV show ‘Breaking Bad’ (which I’ve admittedly never seen!) but...

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Carer

My husband is my part – time carer, without his help I would not get through the day. There are some days which are better than others, where I don’t need his help as much. MS has created limitations for me. It has been a hard thing to accept. When I started dropping the...

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Giraffe heads above the tree line

One of the reasons I applied to be one of the “Uninterrupted” blogging team was that it was explicitly stated in the call for participants that we could choose to be anonymous.  I love to write and have been thinking about sharing my experience of living with MS for quite some time – but the...

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Phone booth

I previously posted about my first MS episode, when a neurologist (not my current one!) suggested I was legal to drive, even though I couldn’t tell whether a car was moving or not when I looked right at it.  A lot of crazy things get said...

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I spoke about the power of a single word when I revealed my tattoo to you all in my last post. That word was HOPE. I explained the power of this one word, and the effect it has had with me since MS crept in to my life. I...

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A diagnosis of MS seems to come with its own kind of crappy guilt. I feel guilty because my body has betrayed me. My body is attacking itself from the inside, destroying nerve pathways. My body is slowing destroying its every function. I simply feel guilty because I can't do what I once could....

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Steep stairs with wheelchair rails

I never had a broken bone as a child, but I wanted one.  The kids who had an arm in a cast for weeks on end got all sorts of benefits – from extra attention as everyone wrote on their plaster, to being allowed to go first in line, to not having to take part in physical education.  It never...

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Beautiful view of the coast

There's the great Australian practice of the sea change, and then there's retraining as an adult and embarking on a whole new career.  What is it about people with MS that makes so many of us go back and train at something new when we are diagnosed?  I did it, and I know several others who have...

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Firstly, apologies for my absence from blogging. Not only did I want to give you all some recovery time from my last (very long!) post, but it’s also been a very hectic time for me in my work life. I’m really excited to...

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View through ancient stones

As promised, here’s the story there wasn’t room for in my last post.  Some reading for your weekend enjoyment!

 

Six degrees of separation

They say that everyone on the planet is...

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Clouds

The months leading up to the diagnosis of MS are difficult for most of us.  But when a physician’s body fails them, there's an additional, subtle layer of angst to deal with.  Doctors don't get sick.  And when we do, it is uncomfortable for everyone involved.  To witness another doctor proving...

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