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Tackling Obstacles

OMG! It's 10am and it's already hot. Thirty-five degrees hot!

MS and heat are not friends. In fact, they are strange bed fellows. Just a rise of 0.2 degrees to 0.5 degrees in body temperature can cause all or some of your MS symptoms to poke their little heads into your...

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Seriously, I love my sleep. Now that I’m not getting enough, I find it an exquisite form of torture. One, I must say I would rather live without. There is nothing like the hours before dawn for contemplating one’s soul and I’ve been doing a dreadful amount of this. I have always been lucky...

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Juggling Juveniles and Jobs

Late last year, I posted about so-called occupational hazards, issues that crop up for many MS diagnosees who undertake paid (or unpaid) employment. Thank you to all who responded: it has been very illuminating to read...

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As terrible as it is, I must admit I am failing at my chance to seize the day, simply because I’m just to exhausted to care. I hate to say it but life is passing me by. I’m just a mere spectator in the sport called life because I don’t have the energy to participate.

 ...

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To Chose

They say that, illness, being a parent, and living in a rural/regional setting can all isolate you from the world. I just happen to tick all three of those boxes. There have been times especially in the past five years since my twins arrived, that I have felt the immense pressure of isolation....

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 Paraesthesias are defined as “Abnormal sensation, typically tingling or prickling. (Pins and needles) caused by pressure on or damaged peripheral nerves.” Another strange phenomenon of MS. Apparently up to 90% of people with MS experience paraesthesias of some description....

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Sleep

For someone who goes to sleep each night and wakes up feeling refreshed I can understand how it could seem inconceivable when they hear about someone who is always tired, no not just tired fatigued. Fatigue is one of the most common symptoms in Multiple Sclerosis, and it is also one of the most...

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hiding under the covers

This post has been a work in progress for a number of weeks now, as I wanted to give this topic the respect and honesty that it deserved. It has been challenging, and with that I hope you can leave any preconceived ideas and judgements on the shelf and take this post for what it is intended....

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R U Ok

R U Ok day is a national campaign in Australia bringing awareness to suicide prevention. R U Ok encourages people to check in and ask the question, start a conversation. A conversation which just might change someone’s mind about taking their lives.

People with a chronic illness...

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Occupational Hazards

As a wife, a mother and an employee, I wear many hats. For the most part, I love the multi-faceted nature of my life and very much enjoy my job(s). I work nearly full-time now at the local university, I have a wonderful husband and three charming and challenging children and I’m totally digging...

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Fiji

Last week I did something that has been firmly on my to do list for the last couple of years. I travelled overseas, for the first time since my diagnosis! Although when making the plans with my friend who was flying in to meet me there, I was cool calm and collected I was beyond nervous about...

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Sometimes I curse the spasticity in my legs. I get out of bed and seriously walk like a robot, an old fashioned one at that. Nothing bends, my legs are so stiff. Eventually they warm up to the point where my muscles give a little and you can't tell I'm not human. Normally as the day wears...

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I know your all tired of hearing about fatigue but lately it's been on my mind a lot, well for most of this year if I'm honest. So I will just have my say on it and never open Pandora's box again. I say Pandora box because I truly believe fatigue is one of lifes...

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Sometimes, especially when I'm really tired , words seem to escape me. After night shift when I'm handing over my patients, it's like the word is there but I can't articulate it. So oft times I resort to using words that have similar meanings but they are not the words I want! I find it...

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Triple P

In my last post, I talked about the importance of being able to express emotions and then move on. As part of this process, I crafted this post in an attempt to voice my frustrations following some very challenging...

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Winter Sunset

I had been planning a post about peoples reactions to my diagnosis, though it would seem that this decided it wanted to come out more.

The person standing there looking at me, physically looked like the same person I knew, though there was something behind her eyes. Self-...

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Kiss Goodbye to MS

In my last post, I outlined, using the analogy of Frodo’s journey, my own perception of the struggles I faced on my route to an MS diagnosis. If we revert from fantasy back to the real world, it was Christmas Day, 2013 when...

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Pondering my MS as I do.  I am surprised to find people see traits in me, that I don't.  Amazing, courageous and strong. "Who", "what?" " Are you talking about me?".

I'm not these things. The most amazing, courageous and strong people for me, are the many I have known and encountered on...

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