OMG! It's 10am and it's already hot. Thirty-five degrees hot!
MS and heat are not friends. In fact, they are strange bed fellows. Just a rise of 0.2 degrees to 0.5 degrees in body temperature can cause all or some of your MS symptoms to poke their little heads into your business. It's a feckin pain in the arse.
Last year I struck up an email friendship with an amazing person. Clever, witty, intelligent and above all gentle. I’m going to call this person James, just to protect their identity a little but those of you who know this person will understand, who it is I’m talking about. I just wanted to say goodbye in my own way and what better place than Uninterrupted where we first met.
Well It’s been a good while since I wrote anything for Uninterrupted, actually April was my last blog. Lots of reasons, lots of water under the bridge but we are all back and looking forward to blogging again, which we love.
Seriously, I love my sleep. Now that I’m not getting enough, I find it an exquisite form of torture. One, I must say I would rather live without. There is nothing like the hours before dawn for contemplating one’s soul and I’ve been doing a dreadful amount of this. I have always been lucky in the sleep department, up until last year.
As terrible as it is, I must admit I am failing at my chance to seize the day, simply because I’m just to exhausted to care. I hate to say it but life is passing me by. I’m just a mere spectator in the sport called life because I don’t have the energy to participate.
As I ponder the passing of another year, I sigh with relief. Yes, I actually did survive, I am still standing. (Heaven only knows how.) I may have lost a few of my faculties and brain cells but I remain mostly intact. I turn my thoughts to the year ahead and contemplate what might come my way.
Pondering my year, as I do, I'm not surprised to alight on the fact it’s been a seriously challenging 354 days and a period of time I will be glad to see the back of. Lets just say it’s pretty much been the year from hell. Even the year I separated was not as bad as this year. Stress, upon stress, upon stress. Work stress, health stress, financial stress, family stress. I’m drained.
Paraesthesias are defined as “Abnormal sensation, typically tingling or prickling. (Pins and needles) caused by pressure on or damaged peripheral nerves.” Another strange phenomenon of MS. Apparently up to 90% of people with MS experience paraesthesias of some description.
Sometimes I ponder my romantic future and wonder how the hell I’m ever going to meet someone. Well it’s certainly not going to be in my workplace, where probably 97% of the employees are female, 1% of the sparse male population are gay.
When I was diagnosed with MS, as a nurse there was no question in my mind whether or not to have active treatment. For me it was a no brainer. I'd seen people in hospital with MS, mostly progressive or advanced and it scared me. It was something I never wanted to deal with.