When LGBT meets MS - Q & A with Periklis Papaloukas
19 April 2017
I recently participated in a study exploring the experiences of people in the Lesbian, Gay, Bi-sexual, Transgender (GLBT) community living with MS. It was really great to be interviewed for this research, because it was the first time I had been asked about my experiences as a gay man living with MS (which was the reason why I started contributing to Uninterrupted in the first place!).
When I was initially diagnosed with MS, I read a lot of stories online that suggested my life would now virtually be over. My neurologist had told me “whatever you do, don’t go home and sift through Google results about MS”.
I thought I'd try something a little bit different for my latest blog, and post a Q&A session with an Australian musician, Marie Wilson, who is collaborating with the MS Community to create a 'Song4MS', and raise funds for MS Research Australia. I hope you enjoy it!
Firstly, I can hardly believe it’s been a year since my last blog. At the risk of making excuses for my lack of posts, it has been a busy year with full-time studies and work, along with selling and moving house, and the rest that life throws at us all!
I don’t watch a lot of TV, but when I heard RJ Mitte was visiting Australia for some public speaking engagements on ‘Overcoming Adversity’, I knew I had to get there. RJ has a starring role in the cult TV show ‘Breaking Bad’ (which I’ve admittedly never seen!) but he’s also a passionate disability advocate.
I spoke about the power of a single word when I revealed my tattoo to you all in my last post. That word was HOPE. I explained the power of this one word, and the effect it has had with me since MS crept in to my life.
I hope you’re all well and living in the ‘now’ while exercising, meditating, brain-training, and eating in moderation, after my last post! Thanks so much for those who took the time to read, share, and comment on the last blog. This is my longest blog yet (and they won’t get any longer than this!) so grab and cuppa and get comfortable!
In my last blog I talked about the ‘What ifs’ and it was great to hear positive feedback both here on the Uninterrupted blog, and on twitter as well. I mentioned that I might talk about the things that I do for myself that are in my control to help manage my MS.
In my last blog I briefly talked about the 'what ifs' that can sometimes consume our thoughts and worries. After my initial diagnosis, the 'what ifs' did dominate my every thought and it did take me about a year to find ways to manage them.