The Unaffected One's blog

It’s hard to believe I’ve been an NDIS participant for almost twelve months!  But I had a text from them recently, letting me know I needed to book in to have my plan reviewed before my first year was up.  I owe you all an apology for not providing an update on how I was finding the system after a few months using it.  Sorry!

My first National Disability Insurance Scheme (NDIS) “package” was approved recently.

Some lines in the sand are like solid stone walls that will never shift.  Others are more like children’s sand-drawings that will wash gently away with the next incoming tide. Some of mine have started out immovable, only to erode and change over time.

It is around 18 months since I wrote a short blog post and was selected to be one of the “Uninterrupted” blogging team for MS Australia for the next year. Twenty five posts later (one of them mostly written by a friend) and the year was done.

Most of us have read about “the note” – and a lot of us who live with MS are all too familiar with the experience of the recipient who needed a bit of special consideration (access to a parking spot close

"POSITIVITY DOESN’T CURE CANCER!"

I stumbled across this link on social media last week, accompanied by the short headline (above) that seemed at first glance to say “see – I told you so! Being positive doesn’t impact your health!”  It didn’t sit well with me.

The impact of MS on an individual’s financial future can be catastrophic. There’s a very strong association between MS and loss of employment – and life often includes additional expenses, particularly for those who may find it hardest to continue to work. Just imagine trying to modify your home (if you were fortunate enough to own one) on Centrelink payments!

I never knew anyone with MS growing up.

There’s an often remarked truth that “life goes on”.

I remember seeing a primary school classmate cry when she got her first pair of much needed glasses.  I didn’t understand why she was so upset - I’d worn glasses for years and knew they weren’t that big a deal.