A fledgling "diagnosee"
Greetings readers! Firstly, please let me introduce myself. My name is Sarah and it is an honour and privilege to be a blogger on the MS Australia Uninterrupted website. Many moons ago, I was a biomedical researcher at the University of Oxford but, truth be told, some of that part of my brain atrophied far before any neurodegenerative disorder set in - and was more likely as a result of delivering babies than demyelination! I’m currently the proud mother of three beautiful (in my biased eyes anyway) small children, who rapidly alternate between charming and challenging, as only 3, 5 and 7 olds can. I am also very much enjoying dipping my toes back into part-time paid employment at the local university. In my precious moments of free time, I like to do pilates, yoga and work out, but for the most part my hobbies involve living vicariously through the assortment of extra-curricular activities of my offspring.
It was only a few months ago that I received my MS diagnosis, so I’m still processing both the condition and the convoluted route it took to obtain it. I’m very blessed to have an amazingly patient and understanding husband, who has been uber-supportive during this exceedingly bewildering period of uncertainty. Playing the role of companion (and on more than one occasion, co-conspirator), he has been pivotal in helping me navigate a series of truly bizarre medical misadventures, and in dealing with a myriad of characters and challenges along the way.
As a fledgling “diagnosee” (the word patient doesn’t quite seem to fit), I am sure I will sound naïve to those of you who have much more practical experience with the condition. That’s because I am naïve! My hope is that you lovely readers can aid me in coming to terms with the undertaking that is Life After Diagnosis. As I embark upon this journey, I am faced with many questions and unresolved emotions following the last several months (see Figure 1, below “What I actually think”). My goal of this blog is therefore to share my experiences so far, warts and all, both to serve as a record of my own journey with MS, and to learn from others who have a wealth of knowledge of MS-world. I am also hopeful, that perhaps I can help some readers process their own diagnoses by providing a platform for sharing stories and facilitating open discussions.
Figure 1: Do you remember this Internet craze a few years ago? Can you relate to these images?
I should warn you that as a recovering biomedical researcher, I will likely talk science in some of my posts – I just can’t help it! This is also the point when I'd like to reiterate the fact I am not a doctor. My intention is to impart the most up-to-date, accurate, peer-reviewed information possible, and to the best of my ability. It is not intended as medical advice, but by all means, please use it as a discussion-starter with your doctor and other health professionals.
Enjoy the blog and please keep in touch -I look forward to hearing your comments!