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Disclosure

Revealing My Multiple Sclerosis At Work

Are struggling with the notion of whether you should tell people at work about your MS?

Are you wondering if you should tell your boss?

Do you know if you are even obliged to disclose your condition?

Or would you rather keep this information private and...

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Blank

Let's be blunt, it's just the worst. Why did I come into this room? What was I saying again? I'm sorry, have I told you this before? What were we talking about? Ok, I need to look something up. Let me open my phone, put the pin number in, open the browser and... what was I looking up again? ...

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Lines in the sand

Some lines in the sand are like solid stone walls that will never shift.  Others are more like children’s sand-drawings that will wash gently away with the next incoming tide. Some of mine have started out immovable, only to erode and change over time.

I drew a line that I once thought...

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One thing about having a chronic, debilitating and diagnosed ‘incurable’ illness is having to find ways to tell the same story to people over and over.

You get asked what’s up, or down, and it’s hard to know what to say on the hop.

  • Do I tell him the truth?
  • ...
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Juggling Juveniles and Jobs

Late last year, I posted about so-called occupational hazards, issues that crop up for many MS diagnosees who undertake paid (or unpaid) employment. Thank you to all who responded: it has been very illuminating to read...

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The plaintiff, Sarah, on behalf of herself and those similarly situated, alleges and complains as follows:

  1. Defendant MS has failed to provide a clear definition of itself as a valid entity.  It fails to make available clear biomarkers for diagnostic purposes and persists as a...
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Star wars

It’s occurred to me, on more than one occasion that the majority the general population don’t really know much about MS or the theories about what causes it. And why would they – I certainly didn’t know myelin from your-lin in my pre-MS days. So, in order to remedy this situation, I have put...

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NYE

For our family, we are ending this year in a much more settled state than how we started it. That being said, in the aftermath of Christmas, it feels like we are not so much coasting as stumbling towards the finishline of 2015. Rather than attempting to craft something overly intellectual, I...

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Road to the other side

Today I want to tell you about a recent experience of being totally open about my MS diagnosis in a very public forum.  Perhaps an odd story to relate when I’ve just posted (twice) on my views about...

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Snake in log

“I'll have to tell the other registrars – they have a right to know”

It’s such a familiar situation – spending time with a person who has just been diagnosed with MS, hearing about what they have been through up to this point, answering questions they may have about my own...

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Giraffe heads above the tree line

One of the reasons I applied to be one of the “Uninterrupted” blogging team was that it was explicitly stated in the call for participants that we could choose to be anonymous.  I love to write and have been thinking about sharing my experience of living with MS for quite some time – but the...

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