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fatigue

Unlike most diagnoses of Multiple Sclerosis 24 hours was all it took to receive my diagnosis and, what's more, it was me that asked to be tested specifically for MS

It was November 1997 when I went off to see a neurologist. I had been booked in to see the specialist following a car...

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A Week With MS Brain Fog

There is a fog inside my mind.

Recalling words takes 2 to 5 minutes. I'm normally an intelligent and quick witted woman. I speak two languages fluently, this is, what's the word, starts with an R, ridiculous. Everything is in slow motion right now.

The MS fog is descending.

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When I was initially diagnosed with MS, I read a lot of stories online that suggested my life would now virtually be over. My neurologist had told me “whatever you do, don’t go home and sift through Google results about MS”. Although I understood that this was certainly great advice...

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Imagine if people with MS communicated all their frustrations in haikus…

Fatigue
House needs a tidy.
Not gonna happen. Craving
downtime. Urgently.

Unpredictability
Yesterday all good
Today I am...

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acronyms

As responsible parents in the 21st century, we never swear in front of our kids. (Ok I just lied. We try as hard as possible to minimise their exposure.) Thankfully, while they do happily parrot back some sayings that make me cringe, we appear to have succeeded in keeping them sheltered from...

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Sleep

For someone who goes to sleep each night and wakes up feeling refreshed I can understand how it could seem inconceivable when they hear about someone who is always tired, no not just tired fatigued. Fatigue is one of the most common symptoms in Multiple Sclerosis, and it is also one of the most...

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Occupational Hazards

As a wife, a mother and an employee, I wear many hats. For the most part, I love the multi-faceted nature of my life and very much enjoy my job(s). I work nearly full-time now at the local university, I have a wonderful husband and three charming and challenging children and I’m totally digging...

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Relaxed cat

Samuel posted something pretty special today.  It’s thoughtful, thought-provoking, honest, potentially controversial and really worth the ten minutes or so it will take you to read it through.  Frankly, I wondered if I should wait a few days before putting up my small offering for this week...

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Exhausted worker

In any blog about living with “invisible” MS, it’s inevitable that fatigue has to come up.  Like most aspects of MS, I suspect this one is different for each of us, but the unifying thing about fatigue is that most people with MS...

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