Humour
Unlike most diagnoses of Multiple Sclerosis 24 hours was all it took to receive my diagnosis and, what's more, it was me that asked to be tested specifically for MS
It was November 1997 when I went off to see a neurologist. I had been booked in to see the specialist following a car...
Let's be blunt, it's just the worst. Why did I come into this room? What was I saying again? I'm sorry, have I told you this before? What were we talking about? Ok, I need to look something up. Let me open my phone, put the pin number in, open the browser and... what was I looking up again? ...
Today is a good day.
Today I'm turning off the television and putting on music.
First I'm going to tidy up the mess on the floor, and conquer the vacuum cleaner. It doesn't expect me. It roars to life, but I have no fear. Right now I'm in control.
Victory....
Imagine if people with MS communicated all their frustrations in haikus…
Fatigue
House needs a tidy.
Not gonna happen. Craving
downtime. Urgently.
Unpredictability
Yesterday all good
Today I am...
Late last year, I posted about so-called occupational hazards, issues that crop up for many MS diagnosees who undertake paid (or unpaid) employment. Thank you to all who responded: it has been very illuminating to read...
As responsible parents in the 21st century, we never swear in front of our kids. (Ok I just lied. We try as hard as possible to minimise their exposure.) Thankfully, while they do happily parrot back some sayings that make me cringe, we appear to have succeeded in keeping them sheltered from...
The plaintiff, Sarah, on behalf of herself and those similarly situated, alleges and complains as follows:
- Defendant MS has failed to provide a clear definition of itself as a valid entity. It fails to make available clear biomarkers for diagnostic purposes and persists as a...
For our family, we are ending this year in a much more settled state than how we started it. That being said, in the aftermath of Christmas, it feels like we are not so much coasting as stumbling towards the finishline of 2015. Rather than attempting to craft something overly intellectual, I...
Recently, my co-blogger Amber acknowledged her six year anniversary of her diagnosis-date. My own one year D-Day anniversary took place earlier this month, and while I too need no excuse to eat cake, I have chosen a different way to...
