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living with MS

Blank

Let's be blunt, it's just the worst. Why did I come into this room? What was I saying again? I'm sorry, have I told you this before? What were we talking about? Ok, I need to look something up. Let me open my phone, put the pin number in, open the browser and... what was I looking up again? ...

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Woman watching sunrise in sunflower field

Today is a good day.

 

Today I'm turning off the television and putting on music.

First I'm going to tidy up the mess on the floor, and conquer the vacuum cleaner. It doesn't expect me. It roars to life, but I have no fear. Right now I'm in control.

 

Victory....

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Girl Alone
I am the elephant in the room.
 
Not because you don't love me. Because you love me so much, you don't want it to be real. And maybe if we ignore it, if we don't mention it, if we sweep it under the rug, it doesn't exist.
 
Maybe if we act normal,...
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Sleepy Koala
I've been thinking for days on how to answer this question. What IS my worst symptom? And I tried to remember all of my symptoms and tried to categorise them from least-awful to plain-awful, and found myself really struggling. What's the worst one? 
 
Is it having cuts on...
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When I was initially diagnosed with MS, I read a lot of stories online that suggested my life would now virtually be over. My neurologist had told me “whatever you do, don’t go home and sift through Google results about MS”. Although I understood that this was certainly great advice...

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One thing about having a chronic, debilitating and diagnosed ‘incurable’ illness is having to find ways to tell the same story to people over and over.

You get asked what’s up, or down, and it’s hard to know what to say on the hop.

  • Do I tell him the truth?
  • ...
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Well It’s been a good while since I wrote anything for Uninterrupted, actually April was my last blog. Lots of reasons, lots of water under the bridge but we are all back and looking forward to blogging again, which we love.

A lot has happened in my little world since April, long story...

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how

Have you ever met someone and thought, I don’t know how they do it? Their story of what they have achieved with their life, or what they manage to fit within their day astounds you. How do they manage to get all that done and still remain so positive and focused? Or possibly its been...

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Beach

My son was four months old when my first obvious MS symptoms presented themselves to me for the first time. By the time I reached my diagnosis he was eighteen months old. The decision to have more children was not an easy decision though it was a decision that came quickly. Not wanting to play...

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Bruegel's Icarus

There’s an often remarked truth that “life goes on”. Typically uttered by way of an inept attempt to cheer you up when things are not going well, it’s a truth that I think bears closer inspection.  It has been beautifully explored by WH Auden, in his poem “Musee des Beax Arts”.  I read this...

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Ignas Semmelweis

I remember seeing a primary school classmate cry when she got her first pair of much needed glasses.  I didn’t understand why she was so upset - I’d worn glasses for years and knew they weren’t that big a deal. She turned to me, tears streaming down her face, and sobbed “The trees have...

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Christmas

Christmas can be a crazy time of year, even for those who don't live with a illness like Multiple Sclerosis. After many attempts to write this blog post, I leave you with this.

MS Christmas Carol

This the season to be joyful,

Fa la la la la, la...

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LadywithMS

Two years ago I could not have foreseen what MS would bring to my life. And no, I am not deluding myself with mindless positivity. I despise MS, although I have grown used to it. My surprise stems from the fact that I am a much happier person now than I was before my diagnosis....

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Taj mahal

I’ve always had a bucket list.  I add things all the time and I change my mind about which items are the most important to see with my own eyes. I have crossed a few things off – and every single one has been worth the effort, no matter how different it was from how I imagined it.  There is so...

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Cake

Today is the 6th year anniversary of my diagnosis with Multiple Sclerosis. I do not celebrate, (ok I may use it as an excuse to eat cake!) or commiserate, though I do acknowledge this day each year. I like to take a moment and look back over the past 12 months and see what I have...

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Laughing man in river

Have you noticed how much it helps to smile when you’re trying to do something really tough?  It’s not something I ever really tried to harvest before MS became part of my life.  Let’s be honest – I was almost a decade into living with MS before I finally learned to take advantage of this...

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I don’t watch a lot of TV, but when I heard RJ Mitte was visiting Australia for some public speaking engagements on ‘Overcoming Adversity’, I knew I had to get there. RJ has a starring role in the cult TV show ‘Breaking Bad’ (which I’ve admittedly never seen!) but...

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I spoke about the power of a single word when I revealed my tattoo to you all in my last post. That word was HOPE. I explained the power of this one word, and the effect it has had with me since MS crept in to my life. I...

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Fiji

Last week I did something that has been firmly on my to do list for the last couple of years. I travelled overseas, for the first time since my diagnosis! Although when making the plans with my friend who was flying in to meet me there, I was cool calm and collected I was beyond nervous about...

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Clouds

The months leading up to the diagnosis of MS are difficult for most of us.  But when a physician’s body fails them, there's an additional, subtle layer of angst to deal with.  Doctors don't get sick.  And when we do, it is uncomfortable for everyone involved.  To witness another doctor proving...

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Relaxed cat

Samuel posted something pretty special today.  It’s thoughtful, thought-provoking, honest, potentially controversial and really worth the ten minutes or so it will take you to read it through.  Frankly, I wondered if I should wait a few days before putting up my small offering for this week...

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