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living with MS

Laughing man in river

Have you noticed how much it helps to smile when you’re trying to do something really tough?  It’s not something I ever really tried to harvest before MS became part of my life.  Let’s be honest – I was almost a decade into living with MS before I finally learned to take advantage of this...

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I don’t watch a lot of TV, but when I heard RJ Mitte was visiting Australia for some public speaking engagements on ‘Overcoming Adversity’, I knew I had to get there. RJ has a starring role in the cult TV show ‘Breaking Bad’ (which I’ve admittedly never seen!) but...

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I spoke about the power of a single word when I revealed my tattoo to you all in my last post. That word was HOPE. I explained the power of this one word, and the effect it has had with me since MS crept in to my life. I...

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Occupational Hazards

As a wife, a mother and an employee, I wear many hats. For the most part, I love the multi-faceted nature of my life and very much enjoy my job(s). I work nearly full-time now at the local university, I have a wonderful husband and three charming and challenging children and I’m totally digging...

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Fiji

Last week I did something that has been firmly on my to do list for the last couple of years. I travelled overseas, for the first time since my diagnosis! Although when making the plans with my friend who was flying in to meet me there, I was cool calm and collected I was beyond nervous about...

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Clouds

The months leading up to the diagnosis of MS are difficult for most of us.  But when a physician’s body fails them, there's an additional, subtle layer of angst to deal with.  Doctors don't get sick.  And when we do, it is uncomfortable for everyone involved.  To witness another doctor proving...

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Lowering the bar

A few weeks ago, I put up a post on Letting Go and the lessons learned from my three-year old. My seven year old, never one to shy away from the spotlight, was quick to point out Joshie doesn’t have all the answers. (I...

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Relaxed cat

Samuel posted something pretty special today.  It’s thoughtful, thought-provoking, honest, potentially controversial and really worth the ten minutes or so it will take you to read it through.  Frankly, I wondered if I should wait a few days before putting up my small offering for this week...

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In my last blog I talked about the ‘What ifs’ and it was great to hear positive feedback both here on the Uninterrupted blog, and on twitter as well. I mentioned that I might talk about the things that I do for myself that are in my control...

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Screaming monster face

What’s the thing you’re most scared MS will do to you?

Children ask the most amazing questions!  That one came from a boy of about six who was sitting up the back when I went to the local primary school to tell the children about the MS Readathon.  I had just finished explaining...

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Winter Sunset

I had been planning a post about peoples reactions to my diagnosis, though it would seem that this decided it wanted to come out more.

The person standing there looking at me, physically looked like the same person I knew, though there was something behind her eyes. Self-...

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Kiss Goodbye to MS

In my last post, I outlined, using the analogy of Frodo’s journey, my own perception of the struggles I faced on my route to an MS diagnosis. If we revert from fantasy back to the real world, it was Christmas Day, 2013 when...

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Exhausted worker

In any blog about living with “invisible” MS, it’s inevitable that fatigue has to come up.  Like most aspects of MS, I suspect this one is different for each of us, but the unifying thing about fatigue is that most people with MS...

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An Epic Journey

In my introductory post, I alluded to the series of challenges I faced over the many months it took to reach a definite diagnosis of MS. I am following that up in this post by providing an overview of my perceptions of...

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Living with MS: Five moments I knew I am sick

Living with MS is not pleasant. But one gets used to it. It becomes a little mundane, and quite frankly, I’m bored with it.

But a few moments have cut through the boredom and stunned me. Some I found funny, others not so much. Surprisingly, all have occurred when I have been relatively...

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The Unhelpful Sidekick

‘I have MS, MS doesn’t have me!’ This rings true for those of us who can wade through the grief of being diagnosed with an incurable disease and thrown into the unknown and come out of it still believing that life is good. 

I was not born with MS, it has come to me later in life. Well you...

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Photo of the insides of a wardrobe

As a 30-year old male, I only ever thought I’d have to ‘come out’ the one time. After my teen years were dominated by feelings of fear and worry at the reactions and judgments I may receive by being honest with my sexuality, I came out in my early twenties, with much more acceptance than I had...

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Pondering my MS as I do.  I am surprised to find people see traits in me, that I don't.  Amazing, courageous and strong. "Who", "what?" " Are you talking about me?".

I'm not these things. The most amazing, courageous and strong people for me, are the many I have known and encountered on...

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