Back to top

MS awareness

Unlike most diagnoses of Multiple Sclerosis 24 hours was all it took to receive my diagnosis and, what's more, it was me that asked to be tested specifically for MS

It was November 1997 when I went off to see a neurologist. I had been booked in to see the specialist following a car...

0

I recently participated in a study exploring the experiences of people in the Lesbian, Gay, Bi-sexual, Transgender (GLBT) community living with MS. It was really great to be interviewed for this research, because it was the first time I had been asked about my experiences as a gay man living...

0
Girl Alone
I am the elephant in the room.
 
Not because you don't love me. Because you love me so much, you don't want it to be real. And maybe if we ignore it, if we don't mention it, if we sweep it under the rug, it doesn't exist.
 
Maybe if we act normal,...
0
Beach

My son was four months old when my first obvious MS symptoms presented themselves to me for the first time. By the time I reached my diagnosis he was eighteen months old. The decision to have more children was not an easy decision though it was a decision that came quickly. Not wanting to play...

16
Jaqueline du Pres

I never knew anyone with MS growing up. I took part in Readathon in primary school, but I don’t remember ever having a person with MS come and speak with us about what it was we were trying to raise money for.  Perhaps they didn’t have people do this in the ‘70s?  In any case, for me it was just...

2
To Chose

They say that, illness, being a parent, and living in a rural/regional setting can all isolate you from the world. I just happen to tick all three of those boxes. There have been times especially in the past five years since my twins arrived, that I have felt the immense pressure of isolation....

2
Christmas

Christmas can be a crazy time of year, even for those who don't live with a illness like Multiple Sclerosis. After many attempts to write this blog post, I leave you with this.

MS Christmas Carol

This the season to be joyful,

Fa la la la la, la...

2
Road to the other side

Today I want to tell you about a recent experience of being totally open about my MS diagnosis in a very public forum.  Perhaps an odd story to relate when I’ve just posted (twice) on my views about...

8
Sleep

For someone who goes to sleep each night and wakes up feeling refreshed I can understand how it could seem inconceivable when they hear about someone who is always tired, no not just tired fatigued. Fatigue is one of the most common symptoms in Multiple Sclerosis, and it is also one of the most...

2
hiding under the covers

This post has been a work in progress for a number of weeks now, as I wanted to give this topic the respect and honesty that it deserved. It has been challenging, and with that I hope you can leave any preconceived ideas and judgements on the shelf and take this post for what it is intended....

6
Screaming monster face

What’s the thing you’re most scared MS will do to you?

Children ask the most amazing questions!  That one came from a boy of about six who was sitting up the back when I went to the local primary school to tell the children about the MS Readathon.  I had just finished explaining...

6