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multiple sclerosis

Blank
Let's be blunt, it's just the worst.
 
Why did I come into this room? What was I saying again? I'm sorry, have I told you this before? What were we talking about?
 
Ok, I need to look...
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Woman watching sunrise in sunflower field

Today is a good day.

 

Today I'm turning off the television and putting on music.

First I'm going to tidy up the mess on the floor, and conquer the vacuum cleaner. It doesn't expect me. It roars to life, but I...

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I recently participated in a study exploring the experiences of people in the Lesbian, Gay, Bi-sexual, Transgender (GLBT) community living with MS. It was really great to be interviewed for this research, because it was the first time I had been asked about my experiences as a gay man living...

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Girl Alone
I am the elephant in the room.
 
Not because you don't love me. Because you love me so much, you don't want it to be real. And maybe if we ignore it, if we don't mention it, if we sweep it under the rug, it doesn't exist....
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Sleepy Koala
I've been thinking for days on how to answer this question. What IS my worst symptom? And I tried to remember all of my symptoms and tried to categorise them from least-awful to plain-awful, and found myself really struggling. What's the worst one? 
 ...
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When I was initially diagnosed with MS, I read a lot of stories online that suggested my life would now virtually be over. My neurologist had told me “whatever you do, don’t go home and sift through Google results about MS”. Although I understood that this was certainly great advice...

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Firstly, I can hardly believe it’s been a year since my last blog. At the risk of making excuses for my lack of posts, it has been a busy year with full-time studies and work, along with selling and moving house, and the rest that life throws at us all! It’s been a good year...

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how

Have you ever met someone and thought, I don’t know how they do it? Their story of what they have achieved with their life, or what they manage to fit within their day astounds you. How do they manage to get all that done and still remain so positive and focused? Or possibly its been...

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Beach

My son was four months old when my first obvious MS symptoms presented themselves to me for the first time. By the time I reached my diagnosis he was eighteen months old. The decision to have more children was not an easy decision though it was a decision that came quickly. Not wanting to play...

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Peer Support

When my Dr and I discussed the possibility that I may have Multiple Sclerosis, I went home and started searching for answers. My search led me to a website for people with MS, created and managed by someone with MS themselves. This website provided me the...

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To Chose

They say that, illness, being a parent, and living in a rural/regional setting can all isolate you from the world. I just happen to tick all three of those boxes. There have been times especially in the past five years since my twins arrived, that I have felt the immense pressure of isolation....

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Christmas

Christmas can be a crazy time of year, even for those who don't live with a illness like Multiple Sclerosis. After many attempts to write this blog post, I leave you with this.

MS Christmas Carol

This the season to be joyful,

Fa la la la la, la...

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LadywithMS

Two years ago I could not have foreseen what MS would bring to my life. And no, I am not deluding myself with mindless positivity. I despise MS, although I have grown used to it. My surprise stems from the fact that I am a much happier person now than I was before my diagnosis....

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Cake

Today is the 6th year anniversary of my diagnosis with Multiple Sclerosis. I do not celebrate, (ok I may use it as an excuse to eat cake!) or commiserate, though I do acknowledge this day each year. I like to take a moment and look back over the past 12 months and see what I have...

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I spoke about the power of a single word when I revealed my tattoo to you all in my last post. That word was HOPE. I explained the power of this one word, and the effect it has had with me since MS crept in to my life. I...

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Firstly, apologies for my absence from blogging. Not only did I want to give you all some recovery time from my last (very long!) post, but it’s also been a very hectic time for me in my work life. I’m really excited to...

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I hope you’re all well and living in the ‘now’ while exercising, meditating, brain-training, and eating in moderation, after my last post! Thanks so much for those who took the time to read, share, and comment on the last blog. This is my longest blog yet (and...

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Winter Sunset

I had been planning a post about peoples reactions to my diagnosis, though it would seem that this decided it wanted to come out more.

The person standing there looking at me, physically looked like the same person I knew, though there was something behind her eyes. Self-...

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My diagnosis didn’t come quickly! It took just over twelve months, three relapses, three MRI’s, one lumbar puncture, two neurologists, one urologist, one physiotherapist and a speech therapist, before it was confirmed. In amongst that was the most stressful traumatic year in my life. I lived in...

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Living with MS: Five moments I knew I am sick

Living with MS is not pleasant. But one gets used to it. It becomes a little mundane, and quite frankly, I’m bored with it.

But a few moments have cut through the boredom and stunned me. Some I found funny, others not so much. Surprisingly, all have occurred when I have been relatively...

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