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My first National Disability Insurance Scheme (NDIS) “package” was approved recently. For those who like the punch line up front, so far the experience of becoming an NDIS participant has been a good one for me.  I’m right at the beginning of using this new system, but since I agonized for many...

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Tennis

Most of us have read about “the note” – and a lot of us who live with MS are all too familiar with the...

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Peer Support

When my Dr and I discussed the possibility that I may have Multiple Sclerosis, I went home and started searching for answers. My search led me to a website for people with MS, created and managed by someone with MS themselves. This website provided me the...

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LadywithMS

Two years ago I could not have foreseen what MS would bring to my life. And no, I am not deluding myself with mindless positivity. I despise MS, although I have grown used to it. My surprise stems from the fact that I am a much happier person now than I was before my diagnosis....

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Giraffe heads above the tree line

One of the reasons I applied to be one of the “Uninterrupted” blogging team was that it was explicitly stated in the call for participants that we could choose to be anonymous.  I love to write and have been thinking about sharing my experience of living with MS for quite some time – but the...

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I spoke about the power of a single word when I revealed my tattoo to you all in my last post. That word was HOPE. I explained the power of this one word, and the effect it has had with me since MS crept in to my life. I...

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View through ancient stones

As promised, here’s the story there wasn’t room for in my last post.  Some reading for your weekend enjoyment!

 

Six degrees of separation

They say that everyone on the planet is...

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Clouds

The months leading up to the diagnosis of MS are difficult for most of us.  But when a physician’s body fails them, there's an additional, subtle layer of angst to deal with.  Doctors don't get sick.  And when we do, it is uncomfortable for everyone involved.  To witness another doctor proving...

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I hope you’re all well and living in the ‘now’ while exercising, meditating, brain-training, and eating in moderation, after my last post! Thanks so much for those who took the time to read, share, and comment on the last blog. This is my longest blog yet (and...

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Door with door knocker

My grandmother had a saying “knock on any door and you’ll hear a story”. She knew how to put the kettle on quickly and she always had a tin of some nice, home-baked treat to enjoy with the tea and conversation.

Battling public transport is not a bad time to practice “door...

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Expectations

In my last post, I outlined five take-home messages to doctors that draw to your attention how to (and how not to) treat a patient when there is considerable uncertainty surrounding the diagnosis. In this second instalment of my...

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In my last blog I briefly talked about the 'what ifs' that can sometimes consume our thoughts and worries. After my initial diagnosis, the 'what ifs' did dominate my every thought and it did take me about a year to find ways to manage...

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Kiss Goodbye to MS

In my last post, I outlined, using the analogy of Frodo’s journey, my own perception of the struggles I faced on my route to an MS diagnosis. If we revert from fantasy back to the real world, it was Christmas Day, 2013 when...

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Thanks to everyone who's taken the time to read my first blog, and especially to those who took the time to comment. I love that I'm not alone in the MS closet, it's nice and cosy!
The topic for my second blog post was a simple choice for me. I feel I need to address the 'elephant in the...

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An Epic Journey

In my introductory post, I alluded to the series of challenges I faced over the many months it took to reach a definite diagnosis of MS. I am following that up in this post by providing an overview of my perceptions of...

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Sarah's eyes

Greetings readers! Firstly, please let me introduce myself. My name is Sarah and it is an honour and privilege to be a blogger on the MS Australia Uninterrupted website. Many moons ago, I was a biomedical researcher at the University of Oxford but, truth be told, some of that part of my brain...

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