Back to top

Welcome To Your Diagnosis

13 July 2015
Amber Airey
My MS Journey
MS symptoms
clinical
multiple sclerosis
relapsing ms

My diagnosis didn’t come quickly! It took just over twelve months, three relapses, three MRI’s, one lumbar puncture, two neurologists, one urologist, one physiotherapist and a speech therapist, before it was confirmed. In amongst that was the most stressful traumatic year in my life. I lived in limbo of ‘what if’ and the ‘do I’ for twelve long months. During that time my symptoms ranged from nerve pain, intolerable itchiness, unbearable fatigue, incontinence, memory issues, muscle spasms just to name a few. The hits kept coming and just when I thought I had recovered I was hit again. To the outside world I looked the perceived normal, while on the inside I couldn’t quite work out how I felt.

Funny thing about limbo, sometimes it can affect only one part of your life. Although we were in limbo in regards to my possible Multiple Sclerosis, we forged ahead in other areas of our life while we waited it out. Yes the world kept turning, while a little piece of me stopped. Even though life kept moving, that little piece of limbo was ever present in my mind, and I knew one day it would catch up and crash back to life!

It would be fair to say that by the time I received my diagnosis, I had been eased into the idea that I had Multiple Sclerosis so when the time came and my husband and I sat in the neurologist office, it was like a scene out of a movie. It was surreal even though I knew I was living it, though I had become so used to being told still nothing and to go and live my life, this time was different. He had to call for the results of the MRI scan, the radiologist read the report over the phone to him, my neurologist sounded surprised, though a good surprised, like he had heard something he wanted to hear. Hanging up the phone he turned to me and said, ‘they have found a prominent lesion on the ponds, which is part of the brain that coincides directly with your sensory symptoms. I can now say you have MS! It was said in pleasant unassuming tone. Almost like he was telling me something I already knew. ‘Welcome to your diagnosis, please fasten your seatbelt as we are expecting turbulence for the rest of your life, we hope you enjoy your journey with Multiple Sclerosis airlines.’

After a moment the reality kicked in, I took a deep breath and looked at him and asked ‘so this isn’t a case of I come to you next time and you say, let’s do another MRI to double check you really do have MS.’ His words resonated with me. ‘No Amber, when I saw you in March at the hospital I was 80% sure you had MS, now sitting here I am 95% sure. Amber you have MS. I asked him where my balloons and streamers were, at this he laughed.

It’s almost six years since that conversation. A lot has changed for me personally, though I am still a daily passenger on MS Airlines. Wouldn’t it be nice if you received frequent flyer points, and the reward after being a long-standing member was a cure! The trips are as chaotic and unpredictable as ever, service unreliable and I am yet to receive my complimentary glass of champagne. However the difference now is I have come to expect the misadventures that come with travelling through life with this unwanted companion.

How long did it take you get diagnosis? Was it long winded, or did it happen quickly? 

Comments (55)

Rebecca Starr's picture Rebecca Starr replied on

"Welcome to your diagnosis, please fasten your seatbelts" . You couldn't be more accurate in this depiction of life with MS? Wonderful blog. Thankyou for making my day. :)

Amber Airey's picture Amber Airey replied on

Thanks Rebecca. :-) I have met some amazing passengers on MS Airlines I am in good company. Its just a shame thats how we have all met. Would be much more pleasant if we were headed somewhere exotic.

Mickie's picture Mickie replied on

My developer is trying to convince me to move to .net from PHP. I have always disliked the idea because of the costs. But he's tryiong none the less. I've been using Movable-type on various websites for about a year and am worried about switching to another platform. I have heard good things about blogengine.net. Is there a way I can transfer all my wordpress posts into it? Any kind of help would be really appreciated! my web site: <a href="http://multicoderz.com/bubblewitch.php">bubble witch 2 saga hack apk</a>

Dorie's picture Dorie replied on

It's awesome to go to see this web page and reading the views of all colleagues concerning this paragraph, while I am also eager of getting know-how. Take a look at my web site - <a href="http://apkdownload4you.com/street-for-klwp/">StReEt for KLWP apk download</a>

Joanna's picture Joanna replied on

Dragon City : A fantastic Game You tuly Should Look at Monster Metropolis can be a video gme which can be actually well-known these days. Even so usually do not worry in the event that it does not take very first time you see this unique video game mainly because we will point out the idea in this post. Nevertheless the primary objective of the post is to tell you ways to get free of charge valuable jewels due to this certain fantastic adventure. And you should rapidly understand how great this specific sport will be. A location for you to interact with : that had been tthe actual notion of this particular inventor connected with FACEBOOK OR TWITTER when he commencded providing this amazing site. However there were simply no prospect of a site such ass this to get well-liked. Consequently, the particular inventor related using this website page utilized video game titles that naturaloly individuals for you to speak with each other and participate in flash games together. There are several firms that will manufactured their particular online games easily obtainable in this kind of groupp and so are right now common. Andd ass well Monster Metropolis is really a game that received plenty of standing in short timeframe. It truly is time for it to investigate exactly what this specific video gaming is providing. Monster Location will be amid probably the most fun online games on the net. But it happens too be in adddition involved along with Fb. This implies that you can engage in the item with all your pals even though helping thee other person. That's a exciting video game where people nurture ones dragons inside a outstanding globe filled with countries. It is possible to furthermore fight next to many oother avid gamers within a industry and see which charactedristics the most efficient legendary critters team. Create a excellent planet full of activities. Receive a lot of dragons, replicate in addition to degree upwards the crooks to always be sought after becoming an specialist associated with dragons. Immediately affter you hsppen too be established, you'll become inn a position to struggle toward lots of other gamers. Nonetheless this kind of online game is in addition designed for cell phones, not necessarily specifically in Facebook themselves. You'll can easily engage iin your adventure everywhere you'll want. Lots of reesources are going to be important if perhaps you need to rapidly educate your mythical beasts. This is why we're the following for making your own Dragon Location morning much more simple with a createsd dragon City hack appplication thawt could present yoou with unrestricted usage of normal assets and also just aboiut all that you will require within this unique online game. As being a Dragon Learn at this point is easy and as well risk-free and it's reslly the just couple of clicks aside only when yoou may be using dragon city cheats which have been made available coming from dragon City hack instrument. Fighting arena is definitely anticipating people : take note to apply dragon City hack apk. In addition, I have to explain that your particular page will in no way receive suspended by means of this type of dragon City hack device. Continuous messages aree offered for this particular dragon City hack instrument. That ensures in which dragon city cheats are going to be running. Just what exactly are you looking onward for you to? Make use of dragon city cheats and take advantage of the adventure towards max degree. www.gopspgo.com

Lawrie's picture Lawrie replied on

'Only' one year! Seems strange to think you are possibly one of the 'lucky' ones! Thanks for highlighting some of the difficulties around diagnosis Amber. I look forward to your next post, and I hope you get lots of comments from other people affected by MS that share how difficult it was for them to get a diagnosis, and suggestions which can point us towards a more person-focused approach to diagnosis in the future.

Amber Airey's picture Amber Airey replied on

Thanks Lawrie. :-) In all honesty it wasn't until I started writing this post, that I really thought about the process I went through to finally reach that fateful day. I also hope others feel they can share via comments their own experience, so anyone who happens upon my post can relate further.

Jamel's picture Jamel replied on

Attractive element of content. I simply stumbled upon your web site and in accession capital to assert that I acquire actually loved account your weblog posts. Any way I will be subscribing to your augment or even I success you get right of entry to consistently fast. Here is my blog post; <a href="http://multicoderz.com/candy.php">Candy Crush Saga Hack apk download</a>

Edith's picture Edith replied on

Hello There. I found your blog using msn. This is a very well written article. I'll be sure to bookmark it and return to read more of your useful information. Thanks for the post. I will definitely return.

Aurelia's picture Aurelia replied on

Hi! Do you know if they make any plugins to protect against hackers? I'm kinda paranoid about losing everything I've worked hard on. Any suggestions? My website :: <a href="http://Apkdownload4You.com/secret-video-recorder-pro/">secret video recorder pro</a>

Jorge's picture Jorge replied on

It's remarkable designed for me to have a website, which is valuable in support of my know-how. thanks admin Here is my blog post - xem bong da - http://www.xembongdahd.com/truc-tiep-bong-da/link-xem-truc-tiep-bong-da-hd-hom-nay-khong-can-cai-dat/

Floy's picture Floy replied on

Unquestionably believe that which you said. Your favorite justification appeared to be on the internet the easiest thing to be aware of. I say to you, I definitely get annoyed while people think about worries that they just don't know about. You managed to hit the nail upon the top and also defined out the whole thing without having side effect , people can take a signal. Will probably be back to get more. Thanks My web page :: <a href="http://endtimegaming.com/subway-surfers/index.php">subway Surfers hack Ios</a>

Nicole Flaim replied on

Ah, the joys of a "diagnosis of exclusion". Love the bit about turbulence - oh so true! I also had enough MRIs in one year that the kitchen cutlery stuck to me. You almost want to say to the neurologist, "are we there yet?" because it does get to where everything is suggestive of MS, but the line in the sand seems variable in terms of when someone calls it.

Amber Airey's picture Amber Airey replied on

Thanks Sarah. For me, the neurologist had ruled out other possibilities after the first visit. He knew that it was high probability to be MS though I didn't fit into the diagnostic criteria to call it what it was. The ticking of boxes is so important, as there are many people with MS like conditions, though its frustrating just the same. :-)

Cyrus's picture Cyrus replied on

My family every time say that I am killing my time here at web, but I know I am getting know-how daily by reading such fastidious articles. Feel free to surf to my web site ... <a href="http://multicoderz.com/monsterwarlordhack.php">Monster warlord Hack apk</a>

Lora's picture Lora replied on

constantly i used to read smaller articles which as well clear their motive, and that is also happening with this article which I am reading at this time. Also visit my webpage ... <a href="http://apkdownload4you.com/monopoly/">MONOPOLY apk</a>

Misty's picture Misty replied on

Hello mates, good article and good arguments commented here, I am really enjoying by these. My homepage - <a href="http://multicoderz.com/clashofclans.php">Clash of Clans Hack Android</a>

Priscilla's picture Priscilla replied on

What you wrote made a bunch of sense. But, consider this, suppose you typed a catchier post title? I am not saying your content is not solid, however suppose you added something that grabbed a person's attention? I mean Add new comment | Uninterrupted - MS Australia is kinda boring. You ought to glance at Yahoo's home page and watch how they create post headlines to grab people to click. You might add a video or a picture or two to grab people excited about what you've written. Just my opinion, it could bring your blog a little livelier. My web blog <a href="http://apkdownload4you.com/nighttime-speaking-clock-pro/">Nighttime Speaking Clock PRO apk download</a>

Desiree's picture Desiree replied on

Hmm it appears like your website ate my first comment (it was extremely long) so I guess I'll just sum it up what I had written and say, I'm thoroughly enjoying your blog. I as well am an aspiring blog blogger but I'm still new to the whole thing. Do you have any recommendations for inexperienced blog writers? I'd definitely appreciate it. Also visit my web-site ... <a href="http://apkdownload4You.com/docs-to-go-premium-key/">Docs To Go Premium Key Free Download</a>

Marian's picture Marian replied on

Hellⲟ, i feel tһat і noticed yoս visited mү blog thbus i cɑmᥱ to gߋ baсk the choose?.Ӏ'm attempting to iin finding things to improve my website!Ι suppose its goоԀ ebough tօ use some of yoᥙr ideas!!

Monroe's picture Monroe replied on

Oh my goodness! Incredible article dude! Thank you, However I am having difficulties with your RSS. I don't understand the reason why I cannot join it. Is there anyone else getting similar RSS problems? Anyone who knows the answer can you kindly respond? Thanks!! Also visit my web page - <a href="http://multicoderz.com/hayday.php">Hay Day Hack deutsch</a>

Samuel Walsh's picture Samuel Walsh replied on

A great read, and interesting to read how long a diagnosis took people to get. I guess I was quite lucky- there was only a month or two of uncertainty around "it may be this or that" and I was on medication within 4 months of my initial relapse. While nothing is ever perfect, I'm so grateful to live in a country with such a great health care system and professionals.

Amber Airey's picture Amber Airey replied on

Yes! We are so fortunate to live in a country where we have access to the health care system. It is easy to get caught up in the negativity process of getting and receiving a diagnosis, though thankfully we have the technology to find our way there.

Elvira's picture Elvira replied on

Wonderful blog you have here but I was wondering if you knew of any community forums that cover the same topics talked about in this article? I'd really like to be a part of community where I can get feedback from other knowledgeable people that share the same interest. If you have any suggestions, please let me know. Bless you! Feel free to surf to my web page; <a href="http://endtimegaming.com/clash-of-clans/index.php">Clash of Clans hack apk</a>

Alva's picture Alva replied on

Hello this is somewhat of off topic but I was wondering if blogs use WYSIWYG editors or if you have to manually code with HTML. I'm starting a blog soon but have no coding skills so I wanted to get advice from someone with experience. Any help would be greatly appreciated! My web site - <a href="http://endtimegaming.com/hay-day/index.php">Hay Day hack deutsch</a>

Chastity's picture Chastity replied on

Excellent post but I was wondering if you could write a litte mote on this topic? I'd be very thankful if you could elaborate a little bbit more. Kudos!Pricxey lady´s and males a person research a brand new boom beach hack? Require far more boom beach gems although don´t put in a reral income? anyone drop every challenge on account of ones undesirable safeguard? An individual get rid of each invasion? The Aged boom beach hack are patched? Therefore we now have the newest boom beach generator developed!! With all the boom beach hack youu will get lumber as well as gemstone as well as a feew boom beach gold. Your boom beach gold generator is 100 % dissase free in addition to liberal to dwn load forr many. The way to down load your boom beach hack, how you can utilize boom beazch generator and other Common questions with regard to your boom beach hack you possibly can found on each oof our page www.boombeach-hack.net Or perhaps you can identified most course uon Metacafe or maybe watchever. Along with our own boom beach hack are generally consequently beneficial that will vapor along with the playstation 3 or xbox networrk desire to posted your boom beach generator. Consequently make sure you provide you a few remarks and critiques with egards to the boom beach hack many of us fit many work in addition to period for that boo beach generator and also need several coments coming from people. A person hafe problems with this boom beach hack? anyone can´t make totally free boom beach gems? You'll be able to ccontact us upon the web site www.boombeach-hack.net or maybe you'll be able to contact us about myspace twittdr or maybe on a few other social support systems. We aall hope a person a thrilling time while using the boom bewch hack as well aas the cost-free boom beach gems or the boom beach gold. Don´t use additiohal boom beach hack because wwe now have the only real awful programm to be able to crack boom beach gold in addition to bpom beach gems. At the verfy least we've got varrious orher hacks too in your case intended for exambel all of us produced the nedwest hearthstone haqck or even the revolutionary chocolate grrind pop saga compromise though the many time period of our own operate we had put in from the boom beach hack. Your www.boombeach-hack.net Group.

Juliane's picture Juliane replied on

Having read this I believed it was really enlightening. I appreciate you finding the time and effort to put this short article together. I once again find myself personally spending a lot of time both reading and commenting. But so what, it was still worthwhile! My website :: <a href="http://endtimegaming.com/amazon-gift/index.php">Amazon Gift Card Generator</a>

Velda's picture Velda replied on

I'm extremely pleased to discover this site. I need to to thank you for your time for this wonderful read!! I definitely loved every bit of it and I have you book-marked to see new stuff in your site. Stop by my homepage <a href="http://apkdownload4you.com/fiete-choice/">Fiete Choice apk download</a>

Sylvia's picture Sylvia replied on

Haі ! Ini Artikel bbisa tidak ditulis jauh lebih baik! Akan melalui ini posting mengingatkan saya temann sekamar saya sebelumnya! Dia terus terus memberitakan tenntang ini. Saya akan depan posting ini kepadanya. Cukup yakjn dia akan memiliiki baik baca. Teerima kasih untuk berbagi! Ӎy web pаgе; infotujuanwisata.сom/wisata-gunung-bromo-129/ - http://infotujuanwisata.com/wisata-gunung-bromo-129/

Claudette's picture Claudette replied on

It's remarkable in support of me to have a web page, which is beneficial designed for my know-how. thanks admin Also visit my webpage <a href="http://apkdownload4you.com/officesuite-font-pack/">Officesuite Font Pack Apk</a>

The Unaffected One's picture The Unaffected One replied on

Thanks for the wonderful airline analogy, Amber. So true! Complete with all the uncertainties, delays and unexpected detours.......and just occasionally the joy of discovering some amazing places. Thanks for a great way to view the journey!

The Purity Of Evil's picture The Purity Of Evil replied on

I remember the phone call with my doctor. She was more shocked than I was! I was standing on the balcony, on a beautiful spring afternoon, and all I had to say - after she told me there'd been a lesion spotted - was that I was going to have a cup of tea. I also didn't have to endure the journey you did. You've come out of it on a great note, and you're still singing. I love it. Keep running up those frequent flyer points! =D

Raleigh's picture Raleigh replied on

Good info. Lucky me I found your website by chance (stumbleupon). I have book marked it for later! Also visit my web-site; <a href="http://endtimegaming.com/dragon-city/index.php">Dragon City hack</a>

Moises's picture Moises replied on

Link exchange is nothing else except it is just placing the other person's website link on your page at appropriate place and other person will also do similar for you. My web site ... <a href="http://multicoderz.com/gameofwar.php">Game of War Fire Age Hack tool</a>

Domenic's picture Domenic replied on

Great beat ! I would like to apprentice at the same time as you amend your site, how could i subscribe for a weblog website? The account helped me a applicable deal. I have been a little bit acquainted of this your broadcast provided bright clear idea Also visit my webpage :: <a href="http://endtimegaming.com/monster-legends/index.php">Monster Legends hack 2015</a>

Kazuko's picture Kazuko replied on

Heya! I'm at work surfing around your blog from my new iphone 3gs! Just wanted to say I love reading your blog and look forward to all your posts! Keep up the great work! Also visit my web blog <a href="http://endtimegaming.com/facebook-pass/index.php">Facebook Password hack 2015</a>

Normand's picture Normand replied on

Hello there! Would you mind if I share your blog with my zynga group? There's a lot of people that I think would really appreciate your content. Please let me know. Thanks My homepage ... <a href="http://Apkdownload4You.com/ibodybuilder/">iBodyBuilder apk deutsch</a>

Iris's picture Iris replied on

WOW just what I was looking for. Came here by searching for multiple sclerosis Also visit my web site :: <a href="http://multicoderz.com/markofdragon.php">Mark of the Dragon Hack tool</a>

Frances's picture Frances replied on

This is really attention-grabbing, You are a very skilled blogger. I have joined your rss feed and stay up for in quest of extra of your fantastic post. Additionally, I have shared your web site in my social networks Also visit my homepage <a href="http://multicoderz.com/farmhero.php">Farm Hero Hack ios</a>

Freddie's picture Freddie replied on

This is really interesting, You're a very skilled blogger. I've joined your feed and look forward to seeking more of your magnificent post. Also, I have shared your website in my social networks! My web-site: <a href="http://apkdownload4you.com/ibodybuilder/">iBodyBuilder</a>

Phillip's picture Phillip replied on

Hey there! I've been following your web site for a long time now and finally got the bravery to go ahead and give you a shout out from Houston Texas! Just wanted to mention keep up the fantastic job! Look into my blog post :: <a href="http://endtimegaming.com/csr-racing/index.php">CSR Racing hack apk</a>

Melissa's picture Melissa replied on

I am not sure where you're getting your info, but great topic. I needs to spend some time learning more or understanding more. Thanks for wonderful info I was looking for this information for my mission. my website; <a href="http://endtimegaming.com/summonerswar/index.php">Summoners War Hack ios</a>

Rosella's picture Rosella replied on

With havin so much written content do you ever run into any problems of plagorism or copyright violation? My website has a lot of completely unique content I've either created myself or outsourced but it looks like a lot of it is popping it up all over the internet without my agreement. Do you know any ways to help protect against content from being ripped off? I'd certainly appreciate it. My web blog: <a href="http://multicoderz.com/godsrush.php">Gods Rush Online Hack</a>

Amee's picture Amee replied on

wonderful put up, very informative. I'm wondering why the opposite specialists of this sector do not understand this. You must proceed your writing. I am sure, you've a huge readers' base already! Take a look at my blog post :: <a href="http://multicoderz.com/legionofheroes.php">legion of heroes hack</a>

Airerel's picture Airerel replied on

buy anastrozole cheap <a href=http://gtcceafaggsd.com>Homchemih</a>, can i stop taking anastrozole

Pages